Jackson et al. - 2016 - Parent education programmes for special health care needs children: a systematic review

Last modified by Hendrick Guerra on 2019/04/10 17:25


Jackson et al.







Journal Article – Systematic Review


Examine the design, implementation and evaluation of parent education programs for families with Children with Special Health Care Needs (CSHCN), to better design interventions that focus on the psychosocial aspects of living with a chronic condition, for both the child and the family.

Key Notes/Findings:

Three common core intervention approaches were: 

  • Use of narrative therapy enabling families to tell their own stories, thus facilitating emotional processing and (co-) construction of meaning
  • A focus on strengthening protective factors such as enhancing parents’ skills in communication
  • Behavioural management and provision of psycho-education to deepen parents’ understanding of their child’s condition and associated developmental challenge
  • Parenting education programmes are useful in supporting and strengthening the role of families in their everyday parenting

Identified several successful elements of effective parenting or family support programmes for children with special health needs:

  • Provision of opportunities for parents/families to tell and share their unique stories
  • Support for the well-being and strengths of the family as a unit (e.g. strengthening relationships between parents, the CSHCN and siblings)
  • Focus on generic skills in relation to parenting (e.g. problem-solving, stress management)
  • Having input from trained professional staff (e.g. expert on chronic illness management)


Jackson AC, Liang RP-T, Frydenberg E, Higgins RO, Murphy BM. Parent education programmes for special health care needs children: a systematic review. Journal of Clinical Nursing. 2016 Jun;25(11–12):1528–47. Available from: http://doi.wiley.com/10.1111/jocn.13178

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