From version 13.1
edited by Hendrick Guerra
on 2018/08/17 15:23
To version 14.1
edited by Hendrick Guerra
on 2018/08/17 15:58
Change comment: There is no comment for this version

Summary

Details

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1 += Challenges our parents face: =
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3 -= Description of this section =
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4 +* Parents experience grief, anxiety, depression, and Post Traumatic Stress Disorder related to providing care for their child/children with medical complexities.
5 +* Parents are frequently exposed to triggers that bring back memories of trauma related to past medical interventions, medical decline, and care needs for their child.
6 +* Parents experience exhaustion because they are required to be hyper-vigilant with their child and are often sleep deprived.
7 +* There is a lack of awareness, sensitivity and compassion towards parents who experience mental health challenges. The parent’s exposure to the trauma that their child has experienced is frequently a contributing factor
8 +* Community based therapeutic supports have long waitlists, and the costs associated to fee for service support are out of reach financially for most families.
9 +* Parents have difficulty in recruiting qualified personnel with experience in working with families with children with medical complexities. This results in minimal time for parents to focus on self-care.
10 +* Parents are experiencing chronic health issues as a result of being in a caregiver role, 24 hours a day.
11 +* Accessing physical support therapies such as massage therapy, physiotherapy, or other self-care supports can be challenging due to lack of time and respite, and the cost associated.
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14 += What the literature says: =
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16 +The literature on personal health of caregivers indicates that these individuals experience immense emotional and physical health difficulties as a result of caring for a child with complex medical needs. These caregivers tend to require frequent use of social work services. Due to these high needs and challenges, it is appropriate for non-licensed staff such as patient navigators to provide additional support for families. Also, siblings of children with medical complexities (CMC) should also be involved in support groups and other similar interventions. There are recommendations of evidence-based interventions which have been proven to be effective for reducing caregiver stress and improving their mental and physical health.
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