First North American Hip Surveillance Program for Children with Cerebral Palsy:  What we’ve learned in the past 5 years

Last modified by Doug Maynard on 2019/04/18 13:42

Hip displacement is a common musculoskeletal problem in children with cerebral palsy (CP). When left undetected and untreated, hip displacement can progress to dislocation that can lead to pain and a decrease in quality of life.  Prompted by a high number of children presenting to our institution with painful, dislocated hips, the development of a provincial hip surveillance program was initiated.  Following consensus building with key provincial stakeholders, the Child Health BC Hip Surveillance Program for Children with Cerebral Palsy launched in 2014 with full provincial rollout in 2016.  The purpose of the surveillance program is to ensure all children in British Columbia receive equitable, evidence-based care and to prevent hip dislocations. Formal hip surveillance programs have been established outside North America, but the creation of this program is the first of its kind in Canada or the United States.

This webinar will describe the development and implementation of a provincial hip surveillance program, including key questions to consider during program development.  Successes and challenges from the past five years will be discussed.  Steps that individual clinicians can take in the absence of population-based surveillance will also be highlighted.

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Stacey Miller, Physiotherapist, Hip Surveillance Coordinator, BC Children's Hospital/Child Health BC, Vancouver, BC

Stacey Miller is a physiotherapist at BC Children’s Hospital where she is the Coordinator of the Child Health BC Hip Surveillance Program for Children with Cerebral Palsy, the first province or state wide hip surveillance program for children with cerebral palsy in North America. She completed a Bachelor of Science Degree in Physical Therapy in 2004 and a Master of Rehabilitation Science degree in 2014, both at the University of British Columbia (UBC).  Stacey has worked as a physiotherapist at BC Children’s Hospital since 2004, focusing on the orthopaedic management of children with cerebral palsy since 2009.  Her current research interests include program evaluation, knowledge translation, and outcomes in children with cerebral palsy. She is a Clinical Assistant Professor in the Department of Physical Therapy at UBC.

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Dr. Kishore Mulpuri

Dr. Kishore Mulpuri is a Pediatric Orthopaedic Surgeon in the BC Children’s Hospital Department of Orthopaedics and an Associate Professor in the UBC Department of Orthopaedics. Since starting at BC Children’s in 2003, Dr. Mulpuri has supervised 83 residents, 46 clinical fellows, 57 medical students, 8 post-graduate students, 15 graduate students, and 26 undergraduate students. He is currently the principal investigator of two of the largest pediatric hip data registries, both of which have over 20 centres contributing data and representing five continents. Dr. Mulpuri holds a number of different positions through his affiliation with BC Children’s Hospital. To name a few, he is the Evidence to Innovation research theme co-lead at the hospital’s research institute, the project chair for quality improvement projects with the Medical and Allied Staff Engagement Society (MASES), and the medical lead for the Child Health BC Hip Surveillance Program for Children with Cerebral Palsy.